FRIDAY, March 14 (HealthDay News) -- When 69-year-old Carl Irwin
arrived at Georgetown University's Lombardi Comprehensive Cancer
Center for treatment of lymphoma, he was handed a blank notebook
and asked to write about how his cancer had changed him and how he
felt about those changes.
Propped on a recliner chair, an IV in his left arm and a pen in
his right hand, Irwin wrote about how he had confronted his cancer
head on from the first diagnosis, how he had assembled what he
called an "advisory" team, and how he felt he had made the right
choice by entering a clinical trial to try to treat his
disease.
"It [writing] helped my confidence immensely," said Irwin, whose
journaling was part of another trial being conducted at Lombardi,
in Washington, D.C. "Sometimes my brain doesn't kick in till I
write."
Plenty of previous research has uncovered physical and
psychological benefits to so-called expressive writing among
diverse groups of patients, including people with chronic illnesses
such as arthritis and asthma. Most of those studies were done in a
controlled, laboratory setting.
The Georgetown study involved patients in an actual hospital
setting.
"We were looking for feasibility," said Nancy Morgan, lead
author of the study chronicling the Lombardi writing experiment
that was published in the February issue of
The Oncologist. "Our goal was to try it in the real
world."
For the study, 63 patients with leukemia or lymphoma were asked
when they arrived at the hospital to complete a 20-minute writing
exercise as well as pre- and post-writing surveys and a telephone
follow-up three weeks later.
Almost half of the participants said writing had changed how
they thought about their illness and led to improvement in their
quality of life, while 35 percent said writing changed how they
felt about the cancer.
Sixty of the 63 people wrote "quite positively," Morgan said.
"That blew my mind."
A software program helped the researchers analyze the writing
for themes, words and phrases indicating how cancer had transformed
the patients' lives. But Morgan said she was most interested in
what people had to say, how they felt about their experience with
the disease.
"Basically, we were trying to stick to thoughts and feelings
rather than the facts," she said. "Writing about facts doesn't get
you anywhere."
"A lot of them wrote in the survey, 'I hate thinking about
cancer but writing helped me process it and I feel better, it
helped me create a script of things I want to say to my family.'
They were saying they just couldn't deal and writing helped them
deal," said Morgan, a writing clinician and director of Lombardi's
Arts & Humanities Program.
Expressive writing has now been incorporated into the hospital's
arts and humanities program and is part of general patient
orientation, when Morgan makes a presentation and hands out blank
journals.
Some trial participants have incorporated the practice into
their lives.
"I started writing updates for relatives and close friends, and
I still do that to this day," two years after the trial, Irwin
said. "They just about always reply."
Sandi Stromberg teaches a class, "Journaling: The Healing Power
of Story," for patients and caregivers at M.D. Anderson Cancer
Center in Houston.
"They say, 'I don't want to just sit here moaning about my
cancer or my loved one's cancer," she said. "For cancer patients,
the whole story becomes cancer. They forget they led perfectly
normal, functioning lives before cancer."
Stromberg uses non-cancer related prompts such as "Write about
your first car." Invariably, the patients want to share what
they've written, and they bond strongly to each other.
"One time I had a man, I didn't think he would take part, and he
did, and he started to cry," Stromberg recalled. "The woman next to
him had the same cancer and was a four-year survivor. She put her
hand on his wrist and said, 'I understand right where you are.' And
he looked at her, and he said, 'Thank you,' with a big smile on his
face."
More information
Visit the
University of Texas for practical information on
writing and health.